About Me

Richard C Brown MBE

I’m married and have two lovely kids. I love music, comedy, reading, writing and film. I was diagnosed with Friedreich’s Ataxia and when I was fifteen. After a few years in the wilderness, I met my future Wife and began to turn my life around. I studied at home with the Open University, studied Modern History at Oxford Brookes University and worked for ten years in the Public Sector before taking medical retirement.

Since then, my extensive voluntary work with the National Charity that represents others with my condition, Ataxia UK, has helped me support my own local Community. Amongst many other projects, I helped set up and run a Community Bus Company and was a School Governor. In 2021, I was awarded an MBE and published my memoir in 2024. I have spent the last few years campaigning to save our village pub.

I’ve been telling my Ataxia stories for years, this Blog is a way of sharing them along with other experiences and insights.

I’m not an ‘inspiration’. I just want to give other disabled people a boost, to show it can work for people like us WHEN we have the support we need to fulfil our potential.