Latest Posts

“a diagnosis such as FA doesn’t only affect the individual with ataxia themselves, but also their parents, siblings and other family members too.”

I want my son to support Aston Villa like me. Why do I feel like I am bestowing a great honour on him?

I believe the current law does not work for dying people. I’ve asked my MP for his support.

Eddie Vedder recently completed a solo tour of America, his set-list featured two George Harrison songs. This was only one of many recent encounters with George Harrison. I had to know more.

I talk a lot about disability and politics in my blog, but did you know about the bus company I helped set up in 2016?

It has been just over a year since the award, I received a letter summoning me to Windsor Castle on the 9th of February for my Investiture. Who conducted it and what was it like?

I wrote this opinion piece for a disability magazine. Intended to provoke discussion, disagreement and encourage readers to share their opinions. It didn’t make the final cut.

I have been getting to know people with FA around the world, I realised that I had experience of many of the things they have yet to face. I […]