Today is International Ataxia Awareness Day and people around the world come together to share their experiences and enlighten others about Ataxia. I have Friedreich’s Ataxia; I have written about my own life-changing origin moment elsewhere in my blog. In this post, I want to look at the wider concept of disability that people with Ataxia find ourselves struggling with after a diagnosis, how it can determine our quality of life and how we can break free.
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[1]If you would like to learn more about Disability, I recommend this book, Shakespeare, Tom, Disability (The Basics). Routledge (2017)
World According to Me: 
Really good article Richard. I have ataxia too & been living with it for 38 years & have not let it stop me!! I’ve travelled extensivelly, clambered up Macchu Pichu, tadem skydived … to name a few. I’ve don’t let my disability define me, I like to think I look at all things positively & life my life to the full. Keep up your work in raising Ataxia Awareness!!
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Thanks Nigel, it took me long enough to work that out – but if I can help anyone else…
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Thank you Richard for your blog. If we could get everyone to read this things would change. Liz Flint
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Hi Liz, Thanks for your comment – we’ll change things one day/person at a time if we have to!
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